Tag: literature of disability

Hunchback

KathrynLeave a comment

Saou Ichikawa’s 2023 novella Hunchback is a striking work of fiction and a major contribution to the literature of disability. Ichikawa’s brutally honest depiction of her disabled protagonist’s physicality is magnetically compelling and thrusts the reader into a world where the conveniences of the able-bodied cannot be taken for granted.  

Shaka is a resident of Group Home Ingleside, a private care facility established by her wealthy parents. Shaka owns the facility, and she collects income from several rental properties in the investment portfolio she’s inherited. In addition, she’s sitting on a trust fund so large that it has to be distributed across several banks.

Despite her wealth, Shaka’s disability confines her to a small studio apartment. While working on a PhD in Disability Studies, Shaka amuses herself by vent-posting on Twitter in between sessions of writing hardcore pornography. She donates her income to the food banks that serve unhoused people, sometimes directly and sometimes in the form of bulk orders of seasoning. Even homeless people deserve food that tastes good, she reasons.

Even as she emphasizes with the disadvantaged, Shaka describes the reality of her own physicality in painstaking detail. Because of muscular atrophy, she’s unable to breathe on her own. Due to social distancing during Covid, leaving the care facility is out of the question. Her PhD coursework is entirely online, and she digitizes academic texts with the aid of a book scanner, as it’s impossible for her to hold heavy books for long periods of time.

And why shouldn’t we have digital copies of books, Shaka demands. When the literati bemoan the digitalization of the written word, who does that benefit, exactly? Shaka’s litany of complaints against the ableism of academia is one of the many currents of anger that drive Hunchback forward. Shaka’s anger breaches the surface at regular intervals, forcing the reader to think critically about the entrenched ableism of the world many of us take for granted.

Despite being engaged in a life of the mind, Shaka has one dream – to become pregnant and then get an abortion. While she’s not particularly interested in the fantasy sex she narrates in her shallow and disposable smut stories, there’s something about the particular physicality and “human-ness” of pregnancy that she finds intriguing.

A golden opportunity falls into Shaka’s hands when a young male caretaker named Tanaka reveals that he’s been stalking her on Twitter and secretly reading her erotic fiction. Unfortunately, Tanaka is the worst sort of incel. Not only can he not get a girlfriend, he only became a caretaker because he couldn’t cut it in the corporate world. In his eyes, he’s just as failed by society as Shaka – who, he snaps, enjoys wealth most people could never dream of.

Out of mutual hatred, Shaka and Tanaka orchestrate a tryst. As you might imagine, it doesn’t end well. Suffice it to say that, if you’re looking for an uplifting message, you won’t find it here.

The end of Hunchback mirrors its beginning, with a prolonged description of a sexual encounter. The book’s closing scene is ostensibly narrated by Tanaka’s sister, who takes on a sense of personal responsibility for her brother’s crime of murdering a disabled woman in a care facility by literally choking her to death with his cum. 

I can’t help but suspect that this is once again Shaka writing erotica, albeit with a slightly more literary bent. The scenario is still improbable, but now she’s writing more for herself, fleshing out the characters (so to speak) by imbuing them with personalities and backstories.

Her encounter with Tanaka may have been an abject failure, but Shaka still desires “human” experiences and contact with the broader world. After all, writing – even writing erotica – is about so much more than coming up with a story and posting it online. Shaka never becomes a softer or kinder person, nor would I want her to. What she gains is motivation to be more present in the outside world as she sharpens her insight and hones her craft. 

Ichikawa writes based on her own experience as a disabled person, and Shaka’s voice is focused, specific, and driven. Shaka’s narration pulls the reader through the story with sharp observations and darkly comedic drama, and the steady forward momentum is just as entertaining as it is compelling. In many ways, Hunchback reminds me of Convenience Store Woman, and I’d recommend this book to readers who are receptive to unexpected charm and aren’t afraid to have their comfortable perceptions of reality challenged.

Idol, Burning

Kathryn3 Comments

Rin Usami’s Idol, Burning is only 115 pages long, but this masterfully translated literary novella paints a vibrant portrait of a young woman’s search for community in online fandom.

School has always been tough for Akari, whose dyslexia makes writing Chinese characters by hand extremely difficult. Akari has no problem typing, however, and she pours all of her energy into a fanblog devoted to her oshi Masaki, an actor and member of a popular boy band. During the summer, Akari works as many shifts as she can pick up at her part-time job so that she can buy Masaki’s merch and attend his concerts.

Akari’s world begins to fall apart when Masaki punches an overeager fan, thus becoming the target of intense social media discourse. Akari, who has found friendship and personal fulfilment in her fandom, can’t help but take this abuse personally. To make matters worse, when she returns to high school, she’s informed that she’s failed her junior year.

Usami is unflinching in her portrayal of online cultures, and she’s refreshingly honest about the adverse effects that flamewars can have on vulnerable people seeking support in fandom communities. Akari is never presented as pathological, and the members of her family offer support despite not really understanding the life she leads online. If there’s a villain in this story, it’s the Japanese education system, which refuses to accommodate Akari’s learning style while constantly pressuring her to “try harder.”  

Usami’s writing shines during the quiet scenes of loneliness Akari experiences as she watches her communities crumble apart in real time. While it’s easy to mock the intensity of pop star fandom, Akari’s story helps the reader to understand how the power of a dream can keep a teenager moving forward, especially when they feel that their paths are limited in the offline world. Akari is a beautifully unique and well-realized character, but her failed attempts to find meaning and belonging carry much broader implications concerning how Japanese society views difference and disability.    

The English translation of the book includes short essays by the author and her translator Asa Yoneda, as well as short statements from the cover designer (surrealist photographer Delaney Allen) and the illustrator (comic artist Leslie Hung). The novel’s story stands on its own, but it’s a pleasure to read about the inspirations of the writers and artists who brought it to life.

川のほとりに立つ者は

Kathryn1 Comment

A young woman named Kiyose was recently promoted to the position of manager at an independent café. She devotes her love and attention to the business, but all is not well. One of her employees is a constant source of frustration, and she hasn’t spoken to her long-term boyfriend Matsuki since they had an argument about how Kiyose should handle the situation.

One day, Kiyose randomly gets a call from the hospital informing her that Matsuki is in a coma. The nurse in charge of his care informs her that she’s the closest thing he has to a next of kin, so she dutifully goes to confirm his identity. During her visit, Kiyose learns that Matsuki suffered a head injury sustained under mysterious circumstances, and his only other visitors are two unrelated people she’s never met.

川のほとりに立つ者は initially seems as though it’s going to be a mystery about crime, but it’s actually a character drama about living with invisible disabilities, specifically ADHD and dyslexia. As Kiyose begins digging into Matsuki’s life, she learns that, despite being alienated from his uptight family of professional calligraphers, Matsuki was teaching an adult with dyslexia how to write so that he could pass letters to a woman trapped in an abusive housing situating.

The novel’s title is taken from the proverb 川のほとりに立つ者は水底に沈む石の数を知り得ない, “Those who stand on the river’s shore can never know the number of stones under the water.” After learning about the discrimination faced by Matsuki’s friend, however, Kiyose begins to understand how unfair it is to tell someone with a disability that they’re just being lazy and irresponsible. She realizes that she was being cruel to her employee, who had come out to her as having ADHD, and she resolves to make her café a more accessible and welcoming space while being kinder to the people in her life.

Although her work hasn’t yet been translated into English, Haruna Terachi is a prolific writer who has won a number of literary prizes since her debut in 2014. This is my first encounter with Terachi’s writing, and I enjoyed this short novel, especially the chapters that were narrated from Matsuki’s perspective. I also found it satisfying to watch the mysteries presented at the beginning of the story slowly unravel. That being said, I was unsatisfied with the novel’s conclusion that the solution to systemic discrimination falls on individuals, who simply need to “walk at the same pace” as people with disabilities.

Still, it’s always good to see sympathetic stories about disability – especially invisible disability – and I appreciate Terachi’s pushback against the toxic misconception that disabled people simply aren’t trying hard enough. Along with people interested in the experience of living with disability in contemporary Japan, I’d recommend this book to anyone looking for a fast-paced and wholesome character drama driven by hidden secrets brought to light.